VIDEO: Clear communication, outreach key to boost inclusivity in clinical research

PHILADELPHIA — In order for underserved communities to successfully engage in clinical research, clear communication and multidisciplinary outreach by the medical community is necessary, according to a speaker.

“When you are engaging communities of color, it’s important to give them the information they need to make the right decision with respect to whether or not they’ll participate in research,” Monica Parker, MD, assistant professor of neurology and Education Core member of the Goizueta Alzheimer’s Disease Research Center at Emory University, said in this Healio video at the American Neurological Association annual meeting.

In her presentation, Parker noted that Black men and women have been disproportionately affected by Alzheimer’s disease, consistently underserved by social and health care systems, and are therefore underrepresented in AD research. Her department at Emory has dedicated 10 years’ worth of focus on recruitment and retention of Black patients throughout metro Atlanta into ADRC research and brain donation programs. A significant chunk of the process involves clear communication on what needs to be accomplished and why, as well as the benefits individuals would receive for their participation.

Once that clarity is achieved, Parker noted, individuals are more likely to consent and participate with more enthusiasm. She called upon clinicians to be active in educating the community and partner with local health care providers to ensure the safety of those who take part in clinical research.