More than 75% of children with arthritis report pain that interferes with sleep, attention
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More than 75% of patients with juvenile idiopathic arthritis experience pain that has interfered with their ability to sleep, pay attention and run or walk short distances, according to an Arthritis Foundation report.
Coinciding with Juvenile Idiopathic Arthritis Awareness Month in July, the Arthritis Foundation released the report to shine a light on the experiences of patients with the disease.
The report includes data from a survey investigating the impact of juvenile idiopathic arthritis on the lives of patients aged 5 to 17 years.
According to the report, 77% of parents of patients with JIA reported that pain from the disease moderately or severely interfered with their child’s capability to sleep, pay attention and run or walk short distances.
Other major takeaways indicate that 32% of responding parents said their children “often or almost always tired easily” and that 65% demonstrate “moderate to severe depressive symptoms.”
Uveitis, asthma and fibromyalgia “or other amplified pain conditions,” were the three most common non-arthritis conditions noted among surveyed patients.
The Arthritis Foundation has also announced a partnership with the Childhood Arthritis and Rheumatology Research Alliance (CARRA) to award more than $1.1 million in funding to eight CARRA investigators for research aimed at improving outcomes in childhood rheumatic diseases, including JIA.
In addition, the CARRA-Arthritis Foundation grants program is, for the first time, supporting Career Development Awards to junior faculty, as well as an Implementation Science Testing Grant.
According to the Arthritis Foundation, the awards portfolio funds research that “positively impacts the pediatric rheumatology scientific community, improves treatment strategies for pediatric rheumatological diseases and their implementation and advances the missions of CARRA and the Arthritis Foundation.”
In recognition of Juvenile Idiopathic Arthritis Awareness Month, read some of the best-performing pieces of JIA coverage from Healio Rheumatology below:
ACR guidelines: ‘Turn the pyramid upside down’ for biologic DMARDs in JIA
The American College of Rheumatology has released two updated guideline papers for the treatment and management of JIA, according to a press release. Read more.
TNF inhibitor use in juvenile idiopathic arthritis triples risk for psoriasis
Exposure to TNF inhibitors nearly triples the risk for psoriasis among children with JIA, according to data published in the Annals of the Rheumatic Diseases. Read more.
Adolescents wait longer than younger children to see pediatric rheumatologist for JIA
JIA, compared with younger children, according to research published in the Journal of Rheumatology. Read more.
Children with arthritis exhibit greater internal, psychological disturbances
Children with spondyloarthritis and polyarticular arthritis demonstrate greater internalized disturbances and worse psychological functioning in school and social arenas, according to data. Read more.
Insurance delays in juvenile arthritis not impacted by private, public coverage
Children with JIAwho require TNF inhibitors often experience insurance-led delays to therapy initiation, according to a research letter published in JAMA Network Open. Read more.
References:
Arthritis Foundation releases its first-ever report on juvenile arthritis. https://www.arthritis.org/about-us/news-and-updates/first-report-on-juvenile-arthritis-released. July 11, 2022. Accessed July 13, 2022.
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