Sjögren’s Foundation shares patient stories for awareness month
Click Here to Manage Email Alerts
Impacting roughly 1 million to 4 million Americans, Sjögren’s syndrome is estimated to be one of the most common autoimmune diseases in the United States, according to the Sjögren’s Foundation.
However, despite how relatively common it is, awareness of the disease among the general public lags behind that of other autoimmune disorders such as rheumatoid arthritis or type 1 diabetes.
April is Sjögren’s Awareness Month, and to bring awareness and understanding to the disease, the Sjögren’s Foundation is running a campaign to help tell the stories of patients with the disease. Each day, a different patient is highlighted on the foundation’s twitter feed and website, giving patients with Sjögren’s syndrome the chance to have their voices heard.
In honor of the month and to bring further awareness to the disease, Healio Rheumatology has compiled five recent stories dealing with Sjögren’s syndrome.
'Promising treatments' for Sjögren’s syndrome may enter clinical use in 3-5 years
It is likely that one or more “promising treatments” currently being investigated for Sjögren’s syndrome will come into use within the next 3 to 5 years, according to a presenter at the 2021 Congress of Clinical Rheumatology-West. Read more.
‘Pearls and myths’: Oral, cutaneous signs of rheumatic disease hold ‘clue’ to intervention
Managing oral, ocular and cutaneous complications is critical to optimizing outcomes in conditions ranging from Sjögren’s syndrome to juvenile dermatomyositis, according to a presenter who offered a cross-section of “pearls and myths” at ACR Convergence 2021. Read more.
‘Build a good team; don’t forget cystic disease’: Guidance for lung involvement in Sjögren’s
Although the 2021 consensus guidelines for pulmonary disease in Sjögren’s syndrome may have shed light on this underdiagnosed complication, gaps remain in identification and management of the disease, noted a presenter here. Read more.
Sjögren's drug pipeline prepares for 'next wave' after longtime lapse in therapies
Novel therapeutic approaches and a robust drug pipeline may provide hope for patients with Sjögren’s syndrome, according to a presenter at the 2021 Congress of Clinical Rheumatology-East. Read more.
Fetal heart rate monitoring feasible, accurate in anti-Ro/SSA antibody positive pregnancy
Heart rate monitoring may be a crucial means of detecting rhythm abnormalities in the fetuses of pregnant individuals who are positive for anti-Ro/SSA antibodies, according to data presented at ACR Convergence 2021. Read more.
References:
@SjogrensOrg. https://twitter.com/SjogrensOrg/status/1509641459405930503. March 31, 2022. Accessed Aprril 7, 2022.
Sjögren’s Awareness Month 2022. https://www.sjogrens.org/blog/2022/sjogrens-awareness-month-2022. March 18, 2022. Accessed April 8, 2022.
Collapse
Healio Coverage
Click Here to Manage Email Alerts