Many patients lack skills needed for transition from pediatric to adult rheumatology

ORLANDO, Fla. — Among rheumatology patients, there was a lack of necessary skills for a smooth transition from pediatric to adult specialists, according to data presented at the Rheumatology Nurses Society Annual Conference.

Carolyn Zic, RN, BSN, CPN, from the University of Chicago Comer Children’s Hospital, and a colleague surveyed 29 patients, of whom 24 were female patients. Of the patients, 11 were diagnosed with juvenile idiopathic arthritis and 10 were diagnosed with lupus, both of which were not exclusive. Patients were aged 12 years to 20 years.

Investigators found most patients spoke up during appointments. However, they found a minority of patients saw their doctors alone and independently called their doctors. In addition, preliminary data showed patients’ lack of knowledge about medication refills. Researchers noted a role for rheumatology nurses in facilitating this transition. – by Will Offit

Reference:

Zic C, et al. Setting sail for transition: Identifying needs and barriers to successful transition of Pediatric Rheumatology patients from pediatric to adult providers. Poster #14. Presented at: Rheumatology Nurses Society Annual Conference; Aug. 9-12, 2017; Orlando, Fla.

Disclosures: The researchers report no relevant financial disclosures.