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VIDEO: Patients can be more integral contributors to development of clinical practice guidelines

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SAN FRANCISCO — At the American College of Rheumatology Annual Meeting, Liana Fraenkel, MD, MPH, of Yale University School of Medicine, spoke about the feasibility of more integral patient involvement by developing clinical practice guidelines recommendations based on a voting panel composed entirely of patients.

The pilot study included 10 rheumatoid arthritis (RA) patients, identified primarily from Arthritis Power. Prior to the in-person meeting to evaluate and vote on sample clinical practice guidelines, the panel completed evidence-based guidelines. Only a subset of RA-specific questions that were supported by moderate to high-quality evidence were presented to the panel, based on the assumption that patients would not feel prepared to make judgements in the absence of sufficiently robust data.

Fraenkel said the patients developed nearly the same recommendations for as physician-dominated panels for most questions.