Mayo Clinic launches Limb Loss and Preservation Registry
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The Mayo Clinic has announced plans to launch the nation’s first Limb Loss and Preservation Registry, a data repository for people with limb loss and physicians to collaborate on treatments and prosthetics, according to a press release.
The registry, which recently received authorization from the Federal Risk and Authorization Management Program, aims to improve patient care and technological advancement in a specialty that has a “considerable” data gap, according to the release.
“Until now, there has been little evidence on effective clinical practices and technologies in this field,” Kenton Kaufman, PhD, Mayo Clinic researcher and head of the Limb Loss and Preservation project, said in the release. “This data repository is being hailed as the first national registry of its kind, geographically and demographically providing data that will improve prevention, treatment and rehabilitation efforts for this population,” Kaufman added.
According to the release, the Thought Leadership and Innovation Foundation, a nonprofit organization, will help Mayo Clinic centralize the data.
“The Limb Loss and Preservation Registry addresses a substantial public health knowledge gap by giving stakeholders the ability to analyze data by age, gender, type of limb loss or preservation surgery and prosthetic device,” Reed Hartley, executive director of the Thought Leadership and Innovation Foundation, said in the release. “This will refine rehabilitation approaches and guide improvement of devices for people with limb loss.”
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