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National Marfan Foundation launches mobile website
A new mobile website — www.MarfanDX.org — has been launched by the National Marfan Foundation (NMF), to facilitate the diagnosis of Marfan syndrome and related disorders. The website content is based on the new diagnostic criteria for Marfan syndrome recently published in the Journal of Medical Genetics. The website is compatible with Droid and iPhone smartphones.
“The new mobile site is an innovative use of new technology for doctors who are concerned about the possibility of underlying Marfan syndrome or a related connective tissue disorder,” Mary Roman, MD, member of the NMF board of directors, stated in an NMF release. “The revised criteria simplified the complex process for diagnosis and provided insights into the diagnosis for conditions with overlapping features. The NMF’s new mobile site facilitates access to diagnostic criteria for Marfan syndrome and provides diagnosis and management information for related disorders.”
The mobile website features a summary of the new diagnostic criteria, including seven formulae for diagnosing Marfan syndrome. Expandable text provides a detailed explanation of each formula. The mobile site is also viewable on a desktop computer.
- Loeys BL, Dietz HC, Braverman AC, et al. The revised Ghent nosology for the Marfan syndrome. J Med Genet. 2010;47:476-485.