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The Hypoparathyroidism Association celebrates World Hypoparathyroidism Awareness Day
The first non-profit group in the US advocating exclusively for patients with hypoparathyroidism — the Hypoparathyroidism Association — has kicked off its inaugural membership drive in recognition of today’s second annual World Hypoparathyroidism Awareness Day. In observance, patients, physicians and caregivers are encouraged to spread the word about hypoparathyroidism and acknowledge the need for greater education, more timely diagnosis and research into new, long-term approaches for this disorder.
The membership drive begins today and continues throughout the year, with activities such as the organization’s upcoming patient conference from June 7 to June 9 in Rockville, Md. For the sixth year, the patient conference will bring together the hypoparathyroidism community to discuss scientific advances in the field and offer guidance on patient concerns. Discussions from a notable list of international experts from institutions such as the Mayo Clinic, Massachusetts General Hospital, the Children’s Hospital of Philadelphia and Columbia University highlight this year’s program. In addition, officials from the National Institutes of Health will also speak alongside patients and their caregivers. To register for the conference, please visit www.hypopara.org.
“The annual patient conference is an important venue for the hypoparathyroidism community – patients, caregivers, experts and government officials – to increase the education base for this rare disorder,” Bart L. Clarke, MD, a member of the Hypoparathyroidism Association’s Medical Advisory Board and treating physician at Mayo Clinic in Rochester, Minn., said in a press release.