Patient advocates join to form the Global Patient Alliance for Kidney Health
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Key takeaways:
- The alliance will advocate for policies to improve access to screening and early treatment.
- The group will prioritize training and education for health care professionals.
Seventeen patient advocacy organizations from multiple continents have collaborated to create the Global Patient Alliance for Kidney Health, according to a recent press release.
“The Alliance urges governments to act decisively to protect at-risk patients by investing in proven policy solutions to slow disease progression and prevent severe complications and death,” Marisol Robles, a steering committee member and president of the Mario Robles Ossio Foundation in Mexico, said in the release. “It's important to educate at-risk people about how to keep their kidneys healthy but in heavily burdened countries, governments have an obligation to implement policies that reflect international best-practice.”
The newly formed group, which includes representatives from North and South America, Europe, Asia and the Middle East, aims to increase patient voices and advocate for policies that promote early diagnosis and treatment of chronic kidney disease.
As a solution to the concerns of managing CKD globally, the alliance will advocate for policies to improve access to risk-based screening and early treatment, eliminate health care system inefficiencies, and prioritize training and education for health care professionals.
The alliance's steering committee includes council from:
- Federación Nacional de Asociaciones;
- The Kidney Foundation of Canada;
- Kidney Health Australia;
- American Kidney Fund;
- National Kidney Foundation;
- Kidney Care UK;
- NEF Project; and
- Kidney Tec.
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