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Many patients lack knowledge about advances in cancer diagnostics, treatment
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A majority of patients with cancer and their caregivers lack sufficient knowledge about advances in diagnostic and treatment options, according to results of a survey released by Cancer Treatment Centers of America.
Approximately 80% of patients and caregivers who responded indicated they are generally satisfied with the quality of care they have received. However, more than two-thirds reported they have limited knowledge about the newest treatment options and diagnostic tools.
“Part of our role as a patient’s clinical care team is to learn about their goals and educate them on the latest technological and treatment breakthroughs that may help them fight their disease,” Maurie Markman, MD, president of medicine and science at Cancer Treatment Centers of America and a HemOnc Today Editorial Board member, said in a press release. “As revolutionary advancements continue to be made in cancer treatment, we, as physicians, need to increase our level of engagement with patients to ensure they fully understand the best options for their care.”
The fourth annual 2017 Cancer Experience Survey polled 1,000 patients treated at hospitals throughout the United States, as well as 1,000 caregivers.
Results show key communication gaps.
For example, 28% of patients and 37% of caregivers indicated they understand the benefits of new genomic testing diagnostic tools. However, 58% of patients and 75% of caregivers agreed more knowledge in this area would help inform their treatment decisions.
In addition, 74% of patients and 84% of caregivers expressed interest in learning about immunotherapy, but only 32% of patients and 51% of caregivers had discussed this option with their oncologist.
Half of patients seek a second opinion after diagnosis, survey results showed. However, only one in six patients switched oncologists after treatment initiation.
The use of mobile devices to guide treatment —particularly for tracking vital signs — appeared to be of interest among those surveyed. However, few reported direct experience with these devices outside of research for medical information about cancer.
“Patients and caregivers frequently don’t know what questions to ask, especially after an initial diagnosis, and they typically default to the internet to obtain additional information,” Markman said. “Much of this is difficult for them to interpret, however, so an increasingly important part of our responsibility is to help them understand what they have seen or read and its possible relevance to their treatment options.” – by Kristie L. Kahl