June 09, 2010
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Optimal oncology visit

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I have been thinking about how patients can have an optimal oncology visit.

At an NCI designated Comprehensive Cancer Center, many of the patients I see are here for a second opinion. Nothing is more frustrating for me, the patient and their referring provider than for me to say that I didn't have enough information to offer an opinion or to refer a patient to a clinical trial.

So, if it were up to me, and I could have a wish list about what patients would bring with them to my second opinion visits, it would be:

  • All the progress notes from the oncologist, or at least the treatment summary detailing what chemotherapy the patient has received. This should include dosage and reasons for dose modifications. Patients rarely know exactly what chemotherapy they received (understandably), but this information is crucial in determining next steps. Notes from the surgeon or radiation oncologist is also helpful.
  • The pathology reports and slides. One of the perks of coming to a 2nd opinion is getting the pathology reviewed by a fresh pair of eyes. If they don't bring it, I can't offer that service.
  • The most recent imaging, ideally the last two CTs or MRIs documenting cancer progression status. A chest X-ray obtained for some shortness of breath that has resolved is not helpful, generally, so make sure the right imaging is obtained. Again, I can have radiology read the most recent films, just like pathology.
  • The medication list, including dose and frequency.
  • A copy of the health care power of attorney, if the patient has one. I like to offer a good service to patients, but I can't if I don't have all the information.

I wish I could have a person whose sole job it was was to ensure all of these things were obtained prior to the patient coming to see me. Ah, to dream.