EULAR launches RheumaFacts, a ‘unique data repository’ for RMDs across Europe
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EULAR has launched RheumaFacts, a novel resource for local and national data regarding rheumatic and musculoskeletal diseases in Europe, according to a presenter at the EULAR 2023 Congress.
Anna Molto, PhD, chair of the EULAR research sub-committee of epidemiology and public health, and lead of the RheumaFacts project, described the myriad challenges in dealing with rheumatic and musculoskeletal diseases, from inequities in access to care to an aging population.
“In response, EULAR launched RheumaFacts, a unique data repository,” she said in a press conference at the congress.
According to a EULAR press release, RheumaFacts will support EULAR’s mission of “reducing the impact of RMDs on individuals and society,” and will serve as a “powerful tool to provide health care professionals, researchers, policymakers, and patients with data-driven insights on the status of rheumatologic care across EULAR’s member countries.”
To these ends, experts will survey EULAR member organizations to generate country-specific data on topics ranging from treatment protocols to financial and economic factors that impact rheumatology care, the release said.
“It will help countries organize and gather relevant data that will help at the local and national levels,” said Molto, who is also an attending rheumatologist at Cochin Hospital, in Paris.
Both clinicians and patients can benefit from this information, she added.
“It will explain and describe the current realities of care for patients with RMDs,” Molto said.
Data on the shifting landscape of the rheumatology workforce — doctors, nurses and support staff alike — will also be available.
“We will get to see the reality of the workforce, which is a real concern that directly impacts the burden and care of our patients,” Molto said.
In addition, clinicians can find everything from maps to information about advocacy organizations on the Rheumafacts website.
Perhaps most importantly, Molto noted that the information will be continually updated “over several years” to keep pace with changes in rheumatology care.
“It will not be a one-shot,” she said.
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Molto A. EULAR launches “RheumaFacts”, a unique and pan-European data repository of rheumatic and musculoskeletal disease indicators. Presented at: EULAR 2023 Congress; May 31 to June 3, 2023, Milan, Italy.
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