Issue: February 2021

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January 13, 2021
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Fresenius launches kidney-focused genomic registry to support clinical research

Issue: February 2021
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The Frenova division of Fresenius Medical Care has developed an initiative aimed at developing “the largest renal-focused genomic registry in the world,” according to a company press release. The first participants have been enrolled.

The release detailed the rationale behind the initiative, noting that no such registry exists which creates a barrier to comprehensive kidney disease research.

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Source: Adobe Stock

“The new Frenova registry will close this gap by generating data that adds a clinical and genetic backbone to help support and fuel scientific innovation,” Franklin W. Maddux, MD, global chief medical officer of Fresenius Medical Care, said in the release. “The evidence for genetic drivers in kidney diseases is substantial, but much larger data sets will be needed to untangle the complex interactions that lead to kidney injury. By combining clinical and genetic sequencing data from ethnically and pathologically diverse participants, this genomic and phenotypic research resource will help scientists better understand how genetic variations in patients can lead to more precise diagnoses and therapies that help improve outcomes by individualizing care.”

Kurt Mussina, president of Frenova, also commented on the registry.

“Our renal-focused genomic registry will be a sustainable and comprehensive tool for kidney-focused research,” he said. “It will bring patients, their families, patient advocacy groups, physicians and researchers together in the common cause of improving the lives of people living with kidney disease.”

Healio Nephrology previously reported on precision medicine and the application of genomics in nephrology. That story can be found here.