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National Psoriasis Foundation announces patient-centered platform
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The National Psoriasis Foundation has launched the next phase of its patient-centered research network, Citizen Pscientist, according to a press release.
Citizen Pscientist is an online, interactive community that allows patients living with psoriatic disease “to connect with researchers, share their data and get input from others in the community, and ultimately drive the direction of psoriatic disease research,” according to the release.
The new platform builds on a pilot program that was developed in 2013. In the new phase, the Citizen Pscientist data it to be used to identify a future comparative effectiveness research project, and will likely compare multiple psoriatic disease interventions based on what patients report are most important, the release stated. A registry of anonymous patient data will be created, which can be accessed by researchers.
“Citizen Pscientist will help bridge the gaps between researchers studying psoriasis and psoriatic arthritis and the people living with these conditions,” Michael Siegel, PhD, National Psoriasis Foundation director of research, said in the release.
Reference: www.psoriasis.org