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Organizations announce nonprofit psoriasis registry

The National Psoriasis Foundation and the Consortium of Rheumatology Researchers of North America have announced the creation of the first nonprofit psoriasis registry.

“As a dermatologist treating many people with psoriasis, I am excited there will be a resource to help learn what treatments work best, what complications to anticipate from the condition or its treatments and how to best manage them,” Mark G. Lebwohl, MD, chair of the National Psoriasis Foundation Medical Board, said in a press release.

The registry will collect, analyze and disseminate data from thousands of patients with psoriasis, which will be drawn from questionnaires at dermatology appointments, according to the release. The information will be made available to academic institutions and pharmaceutical companies.

The registry will study treatment safety and efficacy, identify “possible causes of psoriasis, examine the relationship between psoriasis and other health conditions, [such as psoriatic arthritis and] study the impact of the disease on quality of life and other outcomes,” the release said.